After many years of campaigning the law has finally changed in Wales.
On 1 December 2015, Wales became the first UK country to introduce a soft opt-out system for organ and tissue donation.
For more information on how it can affect you visit Organ Donation Wales
been meaning to tell you…
I want to be an organ donor
How will you start the conversation?
Um, ah, ooh or err? It doesn’t matterhow you begin to talk about organ donation, it’s just really important that you do.
We know that eight out of 10 people support organ donation. But half the adults in England have NEVER talked to anyone about donating their organs when they die.
Families are more likely to agree to organ donation if they know it’s what their relative would have wanted. So, please talk it over and help your loved ones to support your decision. For some hints on tips on how to do it visit https://www.organdonation.nhs.uk/organdonationweek.
Start a conversation today and help turn an end into a beginning.
We have received a detailed response from Nick Smith Deputy Director (NEPTS) which you can read and respond to. Patient Transport Update
Welsh Competitors win medals at the British Transplant Games in Liverpool
Fantastic results from Welsh athletes who took part in the British Transplant games in Liverpool on 28th- 31st, July 2016. Congratulations to Tracy Baker from Port Talbot for winning a medal in each of her five events...Gold in Shot Putt, silver in 100m, 200m and cricket ball throw and bronze in 400m.
Congratulations to Keiran Heycock also from Port Talbot . Keiron won 2 gold and one silver in swimming.
Well done Ian Hillier from Cardiff who came fourth in the golf. The tournament was held in pouring rain!
Wales is proud of you all .
All welcome: Come and see what we do
Meet the researchers
Tour the laboratories
Nephrology Division of Infection and Immunity Cardiff University School of Medicine
Please let us know if you’d like to attend in order for us to have numbers for catering
For more information and directions please contact Mrs Kim Abberley (029 2074 8432)
Email: [email protected]
Shaun Thomas is a Renal Youth Worker working in Cardiff University Hospital of Wales and in Morrsiton Hospital in Swansea.
This year he is hoping to do something big to help improve the quality of life for some our young renal patients around South Wales. The plan is to run a residential trip to Newgale in West Wales, taking any renal patients between the ages of 16-30. Even if patients are on dialysis they will be putting provisions in place to ensure they can take part safely and have their dialysis needs met in nearby hospitals.
Welsh Kidney Patient Association (WKPA) has contributed towards the cost of the trip to Newgale in West Wales and proud to support such a worthy ambition.
For Full details read the press release from Shaun Thomas.
Turn2us runs regional workshops across the UK to help front-line workers and volunteers (‘intermediaries’) to use Turn2us’ tools and services to support people in financial need.
For details see the Turn2Us website
Work on a £5.8 million expansion of Morriston Hospital’s renal unit is due to start this spring. The upgrade will transform care for thousands of patients from across the South West Wales region when it is completed next year. Health Minister Mark Drakeford announced the investment today (Thursday 7th January).
We have been working on a patient education initiative developing a patient video series titled 'What Patients Need to Know "Is Tiredness a normal part of Kidney Disease."
Are you a dialysis patient in Wales and unhappy with your hospital transport? You are not alone
The latest magazine kicks off a campaign to improve hospital transport and we need your views
If you are not a dialysis patient then you may not know that many patients still have to travel many miles to their local unit several times a week to receive treatment
Unlike many other treatments this can go on for years .
Whilst many patients are satisfied with the current service, too many still face two hour journeys on top of the four or five hour dialysis treatment.
New video added 24/3/2015
Read more about the scandal of hospital transport in Wales
Calling all Renal Patients and/or their Carers and Families in Wales The information and link included below is aimed at everyone over 16 living in Wales. The Wales Kidney Research Unit has asked the WKPA to circulate this information to renal patients and to ask that they join the survey.
Read more about this important group.
Treatment with peritoneal dialysis (PD) offers significant treatment, lifestyle, and quality of life advantages over hospital haemodialysis. In addition, it is a more cost-effective therapy. The “Achilles’ heel” of PD, however, remains the susceptibility to recurrent infection with detrimental effects on the process of dialysis through direct membrane damage, but also in more severe infection through significant morbidity and mortality.
Welcome to the Welsh Kidney Patients Association (WKPA) website, created by patients for patients in Wales. We hope we have all the information you need about what's going on in Wales for kidney patients and their families.
Use the menus above to find specific topics or search the entire site.
We welcome all contributions so if there is something missing tell us about it and we'll try and include it.
The webpage can be translated into a number of languages, including welsh. See the dropdown menu at the top for to see what's available.
Watch our **NEW**video
Watch the latest TV campaign on changes to organ donation in Wales
Read our inspiring Patient Stories for an insight into life as a kidney patient.
Peter Hampshire, the organ donation lead and ITU consultant in Royal Liverpool Hospital, and Ajay Sharma request your help to relay the ‘Burden of Dialysis’, a home haemodialysis machine and peritoneal dialysis fluids for a week’s dialysis to the top.
On Friday September 9th 2016
At The Village Hotel , Fabian Way , Swansea
7 p.m. -1 a.m.
Dress code: Evening dress/Black Tie
Price : £30 per head
Includes: Welcome drink, 3 course meal, Coffee, Singer;Comedian;Magician and Disco
For all enquiries contact Rachel: Tel: 07800511790 Email: [email protected]