WHO
WE ARE
PDF
Leaflet
The
Welsh Kidney Patients’ Association
(WKPA) is an independent registered charity, which is dependant
on donations, gifts or grants.
It is the patients’ own organization, covering the whole
of Wales, with more than 2,000 members. It is run by patients and
carers for patients and carers.
We have been an all-volunteer group since 1982 and a registered
charity since 1995.
The charity is administered by its honorary officers and a management
committee, who are trustees of the charity. They are elected annually
at the Annual General Meeting held in October.
Membership is FREE and open to all pre-dialysis, dialysis and kidney
transplant patients and their carers.
We are affiliated to the National Kidney Federation (NKF), which
represents kidney patients throughout the UK. This allows WKPA
members to receive the NKF’s FREE quarterly magazine “Kidney
Life”. The NKF also provides a comprehensive selection of
patient information leaflets.
WHAT WE DO
The Association encourages setting-up local self-help/ support
groups for patients, their families and friends to share information
and experiences.
There is also a Befriender Service available at UHW, Cardiff and
Morriston Hospital, Swansea, for patients in need of support.
The WKPA publishes a FREE quarterly magazine - “Kidney Matters
Wales” which informs patients of current and new developments
in their treatment and levels of care. It also includes notices
of forthcoming events.
“Kidney Matters Wales” is also available on the WKPA’s
web-site
www.wkpa.org.uk
The Association supports the Welsh Transplant Team, to compete
at the British Transplant Games.
The Association has undertaken research of patient opinions through
patient surveys, providing Service Providers with patient information
on the level of care.
We provide modest financial support through our Welfare Fund,
for those patients who have trouble in meeting one-off expenditure
relating to their treatment which cannot be met by any other means.
The Association liaises with Hospital Dialysis Units, the Transplant
Unit and other support services.
The Association represents kidney patients on the Welsh Renal Clinical
Network; and the Cross-Party Kidney Group of the Welsh Assembly.
Should you wish to contact the WKPA our address is:-
Pentwyn Dialysis Unit, Unit3, Avenue
Industrial Estate, Croescarden Close, Pentwyn, Cardiff, CF23 8HE
Tel. Nos. 02920 742735 / 02920 748455
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Are
you receiving your free "Kidney Matters Wales" magazine
and the National Kidney Federation magazine "Kidney Life"
?
CLICK HERE and fill in the MEMBERSHIP FORM !
The WKPA web site, established in 2002, has
been developed especially for renal patients, their carers and
families. As webmaster of the site, I rely on patients throughout
Wales to send in information and news items on all renal matters
in the principality. Patients and carers can sign up to receive Kidney
Matters Wales, our magazine, which is also on-line to read,
and Kidney Life,
the magazine of the National
Kidney Federation. Should anyone be interested in the WKPA’s Befriending
Service which is available at both UHW and Morriston, there
is an on-line form to request information.The WKPA
frequently run surveys, and these are always added to the site
for those of you whoprefer to use the web. Links are made to
sites that have valid information for renal patients. There are
links to Children’s’sites, and we have a page for
children who may wish to put something up on-line.
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Web
sites of health professionals who provide our care and other
patient sites are there to access information. There are links
to Renal Patient View and UK
Blood and Transplant. The National Kidney Federation has
a comprehensive site that provides information on claiming benefits,
holiday information and medical queries.In particular, there
is a wealth of information in the Cardiff
Patients Library. This was developed by a team of professionals
at UHW with the WKPA providing the patients representation. Caroline
Jones attended meetings over several months to help provide
this valuable source of information. The following is a list
of headings that will show you how and whereto find the information
you need:-
1.Your
Kidneys & What They
Do
2.Disease&Conditions
3. Treatments & Investigations
4. Peritoneal Dialysis
5. Haemodialysis
6. Transplant
7. Living With Kidney Disease
8. Support Services
9. Diet
10. Drugs
11. Research
12. Glossary
Click
here to view - Cardiff Patients Library |
What
started out as a hobby for me in our spare bedroom has become
a valuable asset
to the committee and,I trust, to you our members.The WKPA web site
belongs to you,
the WKPA pays a grand total of £35 a year for hosting, and
for my own part,
I enjoy being webmaster.
Please send me any information that you think will interest your
fellow patients/carers.
I welcome new ideas from all quarters.
CAVEAT
The
information on this web site is provided "as seen" without
any warranties,express or implied,including but not limited
to the implied warranties of merchantability, fitness for a
particular purpose, or non-infringement.The Welsh Kidney Patients
Association makes no representation or warranty that the information
contained on this web site will be timely or error-free. The
Welsh Kidney Patients Association has not reviewed all the
web sites that may be linked to it's web site and does not
endorse and is notresponsible for the content of any off-site
pages or any other web sites linked to this web site. Your
linking to such web sites is at your own risk.
Thank you for your continuing
support
John
Owens Webmaster
The WKPA are not responsible
for external internet sites
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